Find support for every step of your treatment journey
Get support with JazzCares® for XYWAV
If you are prescribed XYWAV, know that you are not alone in your treatment journey. JazzCares for XYWAV offers you access to information, resources and programs that can help support you while you are taking XYWAV.
Call the Certified Pharmacy at 1-866-997-3688 for more information.
Helping you get access to treatment and assistance
JazzCares for XYWAV provides services that fit your individual needs every step of the way.
Nurse & Pharmacy Support
Your JazzCares Nurse Case Manager will be with you from the very beginning of your treatment experience and will help answer questions you may have along the way. A pharmacist is also available 24/7 to answer any questions you may have about your prescription through the Certified Pharmacy.
Access & Affordability*†
We know that getting your prescription covered is important to you. The JazzCares team will work on your behalf to help you navigate the insurance process so you can start your treatment in a timely manner. Also, JazzCares for XYWAV offers several programs to help qualified patients with the cost of treatment.
Starting & Continuing XYWAV
There are resources to help you begin therapy and manage your treatment, including a Starter Kit from your healthcare provider and a Welcome Kit included in your first shipment.
Personalized prescription refill reminders are also available through the Certified Pharmacy. When you sign up to receive reminders through text or email, you will receive a secure link to the online portal to schedule your next XYWAV shipment.
JazzCares will provide personalized information to help you get the most out of your treatment journey. At different points along the way, you will receive relevant tools and resources to help as you start and continue your therapy.
* Insurance coverage and plans may vary. The JazzCares program at Jazz Pharmaceuticals provides general information only and is not a guarantee of any coverage or reimbursement outcome. All treatment decisions rest solely with the treating physician or qualified healthcare professional.
† See Terms and Conditions for eligibility.
If you are prescribed XYWAV, you are eligible to register for myWAV. Once you’re registered, you’ll have fast and easy access to a wealth of important information, including:
- Personalized support via email and/or text
- Pharmacy contact information to find treatment help and support
- Step-by-step XYWAV dose preparation instructions
- Scheduling tool to help you set a routine that works with your XYWAV dosing regimen
- The myWAV app, which can help you measure your treatment progress, set prescription refill reminders, and more
- Wellness tracker to help track your symptoms and reports to share with your doctor
- So much more! Go to myWAV.com to learn more
Support from someone like you: the XYWAV Mentor Program
The XYWAV Mentor Program connects you 1-on-1 with someone who has firsthand experience taking XYWAV. The XYWAV Patient Mentors understand what you are going through. They listen to you and support you, providing practical tips and meaningful insight by sharing their experiences. Get updates about the XYWAV Mentor Program, and more.
XYWAV® (calcium, magnesium, potassium, and sodium oxybates) oral solution, 0.5 g/mL total salts (equivalent to 0.413 g/mL of oxybate) is a prescription medicine used to treat:
- the following symptoms in people 7 years of age or older with narcolepsy:
- sudden onset of weak or paralyzed muscles (cataplexy)
- excessive daytime sleepiness (EDS)
- idiopathic hypersomnia (IH) in adults.
Important Safety Information
WARNING: Taking XYWAV with other central nervous system (CNS) depressants such as medicines used to make you or your child fall asleep, including opioid analgesics, benzodiazepines, sedating antidepressants, antipsychotics, sedating anti-epileptic medicines, general anesthetics, muscle relaxants, alcohol, or street drugs, may cause serious medical problems, including trouble breathing (respiratory depression), low blood pressure (hypotension), changes in alertness (drowsiness), fainting (syncope), and death.
The active ingredient of XYWAV is a form of gamma-hydroxybutyrate (GHB). Abuse or misuse of illegal GHB alone or with other drugs that cause changes in alertness (or consciousness) has caused serious side effects. These effects include seizures, trouble breathing (respiratory depression), changes in alertness (drowsiness), coma, and death. Call your doctor right away if you or your child has any of these serious side effects.
Because of these risks, you have to go through the XYWAV and XYREM REMS to have your or your child’s prescription for XYWAV filled.
Do not take XYWAV if you take or your child takes other sleep medicines or sedatives (medicines that cause sleepiness), drinks alcohol, or has a rare problem called succinic semialdehyde dehydrogenase deficiency.
Keep XYWAV in a safe place to prevent abuse and misuse. Selling or giving away XYWAV may harm others, and is against the law. Tell your doctor if you have ever abused or been dependent on alcohol, prescription medicines, or street drugs.
Anyone who takes XYWAV should not do anything that requires them to be fully awake or is dangerous, including driving a car, using heavy machinery, or flying an airplane, for at least 6 hours after taking XYWAV. Those activities should not be done until you know how XYWAV affects you or your child.
XYWAV can cause serious side effects, including the following:
- Breathing problems, including slower breathing, trouble breathing, and/or short periods of not breathing while sleeping (sleep apnea). People who already have breathing or lung problems have a higher chance of having breathing problems when they use XYWAV.
- Mental health problems, including confusion, seeing or hearing things that are not real (hallucinations), unusual or disturbing thoughts (abnormal thinking), feeling anxious or upset, depression, thoughts of killing yourself or trying to kill yourself, increased tiredness, feelings of guilt or worthlessness, or difficulty concentrating. Tell your doctor if you or your child have or had depression or have tried to harm yourself or themselves. Call your doctor right away if you have or your child has symptoms of mental health problems or a change in weight or appetite.
- Sleepwalking. XYWAV can cause sleepwalking, which can cause injuries. Call your doctor if this occurs.
The most common side effects of XYWAV in adults include nausea, headache, dizziness, anxiety, insomnia, decreased appetite, excessive sweating (hyperhidrosis), vomiting, diarrhea, dry mouth, parasomnia (a sleep disorder that can include abnormal dreams, abnormal rapid eye movement (REM) sleep, sleep paralysis, sleep talking, sleep terror, sleep-related eating disorder, sleepwalking, and other abnormal sleep-related events), somnolence, fatigue, and tremor.
The most common side effects of XYREM (which also contains oxybate like XYWAV) in children include nausea, bedwetting, vomiting, headache, weight decrease, decreased appetite, dizziness, and sleepwalking.
XYWAV can cause physical dependence and craving for the medicine when it is not taken as directed. These are not all the possible side effects of XYWAV.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.