Idiopathic Hypersomnia is a rare, lifelong sleep disorder.
What does that mean?
Not many people know about Idiopathic Hypersomnia, which is why it is often mistaken for other conditions. Family, friends, and even doctors may need help understanding the symptoms and how it is different.
- Idiopathic = The cause is unknown. Any disease or condition with an unknown source may be called idiopathic.
- Hypersomnia = A condition that causes you to feel very sleepy during the day and/or makes you need excessive amounts of sleep.
- Sleep disorder = There is a problem with the quality, timing, or amount of sleep.
An Idiopathic Hypersomnia diagnosis can be confirmed by identifying key symptoms and completing a sleep study (PSG/MSLT). Often, a doctor specializing in sleep medicine can help guide this process.
Idiopathic Hypersomnia is more than just feeling tired during the day.
It can include a range of symptoms.
Excessive Daytime Sleepiness
- Most common symptom of Idiopathic Hypersomnia
- Feeling disoriented, irritable, or even clumsy when waking up and for hours afterwards
- Often described as "brain fog"
Long Sleep Time
- Sometimes for 11 hours or more
Long, Unrefreshing Naps
Getting diagnosed with Idiopathic Hypersomnia was a wake-up call for me. I finally had a reason why it was so hard to get up and get going in the morning. I was sleeping so much, but it never felt like enough.”
XYWAV IH Ambassador
Real patient compensated for their time. Individual results may vary.
Idiopathic Hypersomnia Severity Scale (IHSS)
The IHSS was created by sleep experts to help determine the severity and frequency of symptoms in people with Idiopathic Hypersomnia and provide a measurement that may be useful for follow-up visits with a sleep specialist.
Use the IHSS to rate your symptoms on a 3- or 4-point scale for each question and review your responses with your doctor.
Diana, a real patient and XYWAV IH Ambassador, recalls her journey to an Idiopathic Hypersomnia diagnosis.
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