myWAV: Your personal 24/7 online resource
Educational resources and support, when and where you need it
You’ll find answers to some of your questions, personalized encouragement, useful tips, and an app to help you get started and offer you support throughout treatment.
myWAV can provide some answers
myWAV is your 24/7 online tool to help provide support throughout your journey.
If you are prescribed XYWAV, you are eligible to register for myWAV
Once you’re registered, you’ll have fast and easy access to a wealth of important information, including:
- Personalized support via email or text
- Pharmacy contact information to find treatment help and support
- Step-by-step XYWAV dose preparation instructions
- Tips to help you set a routine that works with your XYWAV dosing regimen
- The myWAV app, which can help you measure your treatment progress, set prescription refill reminders, and more
- Facts about living with narcolepsy and 2 common symptoms—cataplexy and EDS
- Valuable tips on how XYWAV can fit into your lifestyle
- So much more! Go to myWAV.com to learn more
Learn virtually about XYWAV from an expert
Your healthcare provider is the best source of information about XYWAV, but you can also attend a XYWAV Educational Webinar to help you gain a deeper understanding of your condition, symptoms, and treatment. In these educational sessions, a healthcare professional who is an expert in narcolepsy and XYWAV treatment will help you understand:
- What narcolepsy is and its symptoms
- The importance of considering your total health when living with narcolepsy
- XYWAV and how it can help treat 2 key symptoms of narcolepsy
- How to create a management plan
- What to expect with XYWAV treatment
Programs are paid for by Jazz Pharmaceuticals; experts are paid spokespersons.
Learning from an expert can help give you information about your XYWAV treatment journey!
Register for a XYWAV Educational Webinar session now!
XYWAV™ (calcium, magnesium, potassium, and sodium oxybates) oral solution, 0.5 g/mL total salts (equivalent to 0.413 g/mL of oxybate) is a prescription medicine used to treat the following symptoms in people 7 years of age or older with narcolepsy:
- sudden onset of weak or paralyzed muscles (cataplexy)
- excessive daytime sleepiness (EDS)
Important Safety Information
WARNING: Taking XYWAV with other central nervous system (CNS) depressants such as medicines used to make you or your child fall asleep, including opioid analgesics, benzodiazepines, sedating antidepressants, antipsychotics, sedating anti-epileptic medicines, general anesthetics, muscle relaxants, alcohol, or street drugs, may cause serious medical problems, including trouble breathing (respiratory depression), low blood pressure (hypotension), changes in alertness (drowsiness), fainting (syncope), and death.
The active ingredient of XYWAV is a form of gamma hydroxybutyrate (GHB). Abuse or misuse of illegal GHB alone or with other drugs that cause changes in alertness (or consciousness) has caused serious side effects. These effects include seizures, trouble breathing (respiratory depression), changes in alertness (drowsiness), coma, and death. Call your doctor right away if you or your child has any of these serious side effects.
Because of these risks, you have to go through the XYWAV and XYREM REMS Program to have your or your child’s prescription for XYWAV filled.
Do not take XYWAV if you take or your child takes other sleep medicines or sedatives (medicines that cause sleepiness), drinks alcohol, or has a rare problem called succinic semialdehyde dehydrogenase deficiency.
Keep XYWAV in a safe place to prevent abuse and misuse. Selling or giving away XYWAV may harm others, and is against the law. Tell your doctor if you have ever abused or been dependent on alcohol, prescription medicines, or street drugs.
Anyone who takes XYWAV should not do anything that requires them to be fully awake or is dangerous, including driving a car, using heavy machinery, or flying an airplane, for at least 6 hours after taking XYWAV. Those activities should not be done until you know how XYWAV affects you or your child.
XYWAV can cause serious side effects, including the following:
- Breathing problems, including slower breathing, trouble breathing, and/or short periods of not breathing while sleeping (sleep apnea). People who already have breathing or lung problems have a higher chance of having breathing problems when they use XYWAV.
- Mental health problems, including confusion, seeing or hearing things that are not real (hallucinations), unusual or disturbing thoughts (abnormal thinking), feeling anxious or upset, depression, thoughts of killing yourself or trying to kill yourself, increased tiredness, feelings of guilt or worthlessness, or difficulty concentrating. Tell your doctor if you or your child have or had depression or have tried to harm yourself or themselves. Call your doctor right away if you have or your child has symptoms of mental health problems or a change in weight or appetite.
- Sleepwalking. Sleepwalking can cause injuries. Call your doctor if you or your child starts sleepwalking. Your doctor should check you or your child.
The most common side effects of XYWAV in adults include headache, nausea, dizziness, decreased appetite, parasomnia (a sleep disorder that can include abnormal dreams, abnormal rapid eye movement (REM) sleep, sleep paralysis, sleep talking, sleep terror, sleep-related eating disorder, sleep walking, and other abnormal sleep-related events), diarrhea, excessive sweating (hyperhidrosis), anxiety and vomiting.
The most common side effects of XYWAV in children include nausea, bedwetting, vomiting, headache, weight decrease, decreased appetite, dizziness, and sleepwalking.
XYWAV can cause physical dependence and craving for the medicine when it is not taken as directed. These are not all the possible side effects of XYWAV.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.